MEAdvocacy.org has set up a very simple means of letting key players in government know that you are boycotting the IOM process. All you have to do is click to send a letter.
The letter will be sent to President Obama, the Senate Committee on Health, Education, Labor and Pensions, the US House Committee on Labor, Health and Human Services, Education, and Related Agencies, the House Subcommittee on Health, Employment, Labor, and Pensions, HHS, NIH and all those who are in charge of subdivisions within HHS.
For those who have decided not to send comments to the IOM, this is your opportunity to get your message across to the federal government.
If you have something to say - say it.
Silence = Death.
Tell Congress and HHS, IOM Definition for ME/CFS Set Up to Fail
Tell the Senate and House Committees controlling the Department of Health and Human Services, and HHS officials, the IOM definition effort for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) is set up to fail - just like the one they devised for Gulf War Illness.
If another poor name and definition are created, it will have devastating consequences for one million Americans, and 17 million worldwide, for another 30 years. This needs to stop now before more money is wasted and more lives are ruined. The already existing Canadian Consensus definition and the name Myalgic Encephalomyelitis are excellent and should be adopted now.
You may edit the letter to personalize it. After you send it, please share it widely on message boards, social media and email.
CLICK HERE TO SEND A MESSAGE TO YOUR REPRESENTATIVES.