In an almost incomprehensible move, funding for ME/CFS has been eliminated entirely from the 2016 CDC budget. Both the IOM and the P2P reports - initiatives funded by the Federal government - stressed the woeful underfunding of ME/CFS and called for more research. Yet, the Federal government has responded by cutting funding completely.
Please take a moment to copy and paste the sample email below. Send it to:
[email protected];[email protected]; [email protected]; [email protected]
Reprinted from the Solve ME/CFS Initiative Website
____________________
Reinstate Federal Research Funding for ME/CFS
Please act now! The $5.4 million in CDC funding for ME/CFS has been stricken from the Senate’s version of the 2016 federal budget. As you can see from the graphic below, ME/CFS was the only disease to be reduced to $0.
You have an opportunity to directly impact federal funding for ME/CFS by sending an email to the four key staff members who serve the Senators on this budget committee:
[email protected];[email protected]; [email protected]; [email protected]
Please take a moment to send them an email asking that the funds be reinstated immediately. We have posted a draft letter here for you to use. Feel free to revise as it suits you but note that time is of the essence. We need to have the emails sent within the next week to have any chance at reversing this decision and preserving our much-needed funding.
_____________________
Dear Senator:
I am writing to urge you to reinstate the $5.4 million for Chronic Fatigue Syndrome funding. This is included in the CDC budget under Emerging and Zoonotic Infectious Diseases, on Page 59 of the Senate Budget.
I understand that the $5.4 million in funding submitted by the Centers for Disease Control for Chronic Fatigue Syndrome has been stricken from the 2016 appropriations bill by the Senate Appropriations Committee. This is an appalling act of inhumanity, and I urge you to reinstate the $5.4 million amount into the 2016 budget without delay.
As you may be aware, the prestigious Institute of Medicine of the National Academies published a landmark report on Myalgic Encephalomyelitis/Chronic Fatigue Syndrome on Feb. 10 of this year. The IOM committee unequivocally and scientifically established that Myalgic Encephalomyelitis/ Chronic Fatigue Syndrome is a physiological, not psychological, illness. The IOM stated firmly that Myalgic Encephalomyelitis/Chronic Fatigue Syndrome is “a serious, chronic, complex, multisystem disease... In its most severe form, this disease can consume the lives of those whom it afflicts.”
The IOM committee further established that between 836,000 and 2.5 million Americans suffer from this devastating disease, which carries with it an economic burden of $17 to $24 billion to our country annually.
I am one of those Americans who has had their life and livelihood stolen by this illness, which renders 25 percent of us house- or bed-bound at some point. While the vast majority of us are not well enough to march on Capitol Hill to demand equitable funding from our government, rest assured we are still able to vote.
As a member of the Senate Subcommittee, I urge you to reinstate this $5.4 million CDC funding immediately. You have an opportunity to be on the right side of history.
Sincerely,
Name
Email address
USPS address
Please take a moment to copy and paste the sample email below. Send it to:
[email protected];[email protected]; [email protected]; [email protected]
Reprinted from the Solve ME/CFS Initiative Website
____________________
Reinstate Federal Research Funding for ME/CFS
Please act now! The $5.4 million in CDC funding for ME/CFS has been stricken from the Senate’s version of the 2016 federal budget. As you can see from the graphic below, ME/CFS was the only disease to be reduced to $0.
You have an opportunity to directly impact federal funding for ME/CFS by sending an email to the four key staff members who serve the Senators on this budget committee:
[email protected];[email protected]; [email protected]; [email protected]
Please take a moment to send them an email asking that the funds be reinstated immediately. We have posted a draft letter here for you to use. Feel free to revise as it suits you but note that time is of the essence. We need to have the emails sent within the next week to have any chance at reversing this decision and preserving our much-needed funding.
_____________________
Dear Senator:
I am writing to urge you to reinstate the $5.4 million for Chronic Fatigue Syndrome funding. This is included in the CDC budget under Emerging and Zoonotic Infectious Diseases, on Page 59 of the Senate Budget.
I understand that the $5.4 million in funding submitted by the Centers for Disease Control for Chronic Fatigue Syndrome has been stricken from the 2016 appropriations bill by the Senate Appropriations Committee. This is an appalling act of inhumanity, and I urge you to reinstate the $5.4 million amount into the 2016 budget without delay.
As you may be aware, the prestigious Institute of Medicine of the National Academies published a landmark report on Myalgic Encephalomyelitis/Chronic Fatigue Syndrome on Feb. 10 of this year. The IOM committee unequivocally and scientifically established that Myalgic Encephalomyelitis/ Chronic Fatigue Syndrome is a physiological, not psychological, illness. The IOM stated firmly that Myalgic Encephalomyelitis/Chronic Fatigue Syndrome is “a serious, chronic, complex, multisystem disease... In its most severe form, this disease can consume the lives of those whom it afflicts.”
The IOM committee further established that between 836,000 and 2.5 million Americans suffer from this devastating disease, which carries with it an economic burden of $17 to $24 billion to our country annually.
I am one of those Americans who has had their life and livelihood stolen by this illness, which renders 25 percent of us house- or bed-bound at some point. While the vast majority of us are not well enough to march on Capitol Hill to demand equitable funding from our government, rest assured we are still able to vote.
As a member of the Senate Subcommittee, I urge you to reinstate this $5.4 million CDC funding immediately. You have an opportunity to be on the right side of history.
Sincerely,
Name
Email address
USPS address
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